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Scottish Epilepsy Initiative

Registered charity number SC034354

On JustGiving since Feb 2008

About the charity

Scottish Epilepsy Initiative works in Scotland for people with epilepsy. Each week another 50 Scots will be diagnosed with the disorder. Epilepsy is a distressing, debilitating condition which in many cases seriously affects quality of life. There are approximately 40,000 people in Scotland living with epilepsy.

We are currently raising funds for our Valentine Appeal, helping young people with epilepsy.

St Valentine is the patron saint both of epilepsy and of young people. Our Appeal will encourage teenagers with epilepsy to lead as normal a life as possible by providing the knowledge, skills and positive examples that will help them to cope better with the condition and so integrate better within their peer group.

“I feel like this will not only help young people but other ages of people who have epilepsy, and it will help others understand more about living with epilepsy and not just the medical side”, (female, 17).

There are an estimated 8550 children and teenagers with epilepsy in Scotland. The needs of young people are currently somewhat under-represented within the epilepsy community. There is a real need for emotional and social support. Teenagers with epilepsy may experience significant day to day problems that can prevent them from living ordinary lives. In particular, the stigma attached to the diagnosis can be almost as debilitating as the disorder itself.

For more information please contact us on 0141 248 9972 or info@scottishepilepsy.org

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